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is a sex-linked hereditary bleeding disorder where one of the
plasma proteins needed to form a clot is missing or reduced.
Here are some good places to find out more.
for Disease Control and Prevention - Hematologic Diseases Branch
- The HDB
is mandated by Congress to reduce the complications of hemophilia
and other bleeding and clotting disorders. This site provides
information about the branch; the archive includes statistical
documents and related material.
- National Hemophilia Foundation
about bleeding disorders, news, research, programs, documents,
and much more. Check out the new online education program.
- World Federation of Hemophilia
- The federation
is an international nonprofit volunteer-based organization "dedicated
to introducing, improving and maintaining care for persons with
hemophilia and related disorders." Its web site includes
an extensive online library, a Treatment Centre Directory, product
recalls and info, events, "Ask the Doc," and an extensive,
well-organized list of links and mailing lists. Visitors should
note that the site is sponsored by several medical companies.
- Rare Disorders
- Resources in your state
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