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Chromosome Disorders

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Chromosome disorders can occur when a chromosome has extra, missing or re-arranged chromosome material. The following websites deal with many different kinds of chromosome disorders. We also have separate pages for many specific chromosome disorders.
 
[bullet] Chromosome 18 Registry & Research Society
This nicely arranged website provides general information about genetics and chromosomes as well as specific information about the five major syndromes of chromosome 18.
 
[bullet] Chromosome 22 Central
This Canadian-based parent support group offers information, support and links relating to a wide variety of chromosome 22 disorders. Interactive features include message boards, chat room and mailing list.
 
[bullet] DOC 16 (Disorders of Chromosome 16) Foundation
"The Foundation provides information, education, and support to families of children living with a chromosome 16 disorder and to expectant parents confronting a similar diagnosis. The Foundation also serves as a resource aiding family, friends, caregivers, and medical professionals in their supportive roles." Its website provides an overview of chromosome 16 disorders, FAQs, personal stories, medical articles, and links.
 
[bullet] SOFT (Support Organization for Trisomy 18, 13 and Related Disorders)
"S.O.F.T. is a nonprofit volunteer organization offering support for parents who have had a child with a chromesome disorder, and education to familes and professionals interested in the care of these children." Its website includes educational literature; resources and support groups; related contacts; and information about the organization.
 
[bullet] Trisomy 9 International Parent Support
Links to personal web pages of trisomy 9 families and related sites.
 
Related Subjects
[bullet] Matching Services
[bullet] Rare Disorders
[bullet] Specific disorders (e.g., Cri du Chat Syndrome, Jacobsen Syndrome, Turner Syndrome, Velo-Cardio-Facial Syndrome)
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